A Sunday in the life of a SPED parent: January, 11, 2015

I wrote this as the conclusion to Never Argue 2014. Please enjoy.

Stacie, Kalen, and Brad

For new readers, Brad, 14, had Autism and ADHD. Kalen, 3, had Autism; Global Developmental Delays; Sensory Processing Disorder, and Static Encephalopathy.

I knew the book had to come to an end, so I can start on Never Argue 2015. Yesterday was a horrible day. I was up all night watching Parenthood. I had taken a nap during the day because of a massive headache. My kids also woke up at various times during the night and finally stayed up for a few hours until the alarm for church went off.

I got up. Got them ready for church but with a lot of problems. Brad wanted to take his bath, immediately after Kalen and I got out. This is a problem because I wait until I get Kalen dressed before I get Brad in the tub. I also wait until I at least have some underwear on and maybe a t-shirt. Bathing Brad will get me soaking wet sometimes. No point in putting on all my clothes, if I still have to bathe him.

I had to quickly dress Kalen and rush into the bathroom to soap Brad down before he got out the tub.

Brad also wanted his tablet. The Samsung was dead. I didn’t have time to deal with charging his device, while trying to get dressed and finish packing their bags. I threw the device on my bed and continued to move around.

Brad had a fit over the tablet. Mama is the bitch but this was Sunday and we are going to church. I gave Brad his pants. He put them on backwards. He gave me a fit when I asked him to change them around. He also didn’t like Kalen being on the Nabi. The Nabi is now Kalen’s and Kalen was dressed.

I passed Brad his shirt, I picked out the night before. He put it on and I noticed some of the buttons was missing. I grabbed another button down shirt and Brad had ripped it in the middle. Nice shirts. Brad destroyed them both. I did not notice any of the defects when I put his clothes out on Saturday.

Then, the drama really started.  I gave Brad his slip on shoes. Brad did not want to put them on. He was having problems with them. Wasted time. He put his jacket on backwards. The church called and said they were a few minutes away. I grabbed my purse. I fixed Brad’s jacket. I told the kids to grab their backpacks, so we can start walking downstairs. Brad went downstairs, while Kalen refused to move. The migraine, I had from the day before, was coming back with a toothache, plus sinuses. I picked up Kalen to move downstairs, when I saw the church van pull off. We got left. I can’t blame the bus driver. I don’t know how many minutes he waited. I blame myself. If I had been better prepared. If I had finished packing their bags; If I had hid the tablets; If I picked Kalen up in the first place, and placed Brad’s favorite laced, tennis shoes, near him. If I had picked out shirts, which wasn’t ripped or torn or had buttons missing. Today was a mommy failure. I broke down. My head hurt. My tooth hurt. The van left us. I crawled back into bed and popped 3 pain pills. Yesterday was not my day. Yesterday was not perfect chaos.

And this ends Never Argue with an Autistic Child and Other Special Tales, 2015 edition. Hopefully 2015 will be better and a lot longer.

Kalen had his first (and hopefully last) seizure this weekend

On Friday, I wrote a book review, called Expecting with Hope, which discussed having a baby after a miscarriage, a loss, or a stillbirth. I discussed how Kalen, aka Midget,  was my miracle baby after two miscarriages.

In ER #kalen #midgetlove #midget #autism #staticencephalopathy #asd #gdd #globaldevelopmentaldisorder #spd #specialneeds #sensoryprocessingdisorder breath holding spell plus first seizure.

A photo posted by Stacie D Wyatt (@sdwyatt1980) on Nov 11, 2014 at 7:26pm PST

Kalen has Autism; Global Development Delays; Sensory Processing Disorder; and Static Encephalopathy (Breath Holding Spells--affects heart and brain).

On Saturday, Brad and Kalen was playing. Brad took a toy or something from Kalen. Midget started crying and went into the silent cries. Usually when he silent cries, I quickly grab him and lay him down. His neurologist, Dr. Diana, said this position will bring him back quick after he passes out. I grabbed Kalen, laid him down. He had his spell, came back to, and immediately went into a full blow seizure. NO NO and NO.

I used to have epilepsy. I had seizures. Brad used to have seizures when he was younger. Now, my baby inherited it from me.

Kalen was turning blue; his eyes was rolling back, and he was foaming at the mouth. My phone was buried in my bed since I carpet cleaned earlier. I knew it was dead. I called out for my mother, since she is a nurse. Kalen was non-responsive for minutes. I thought he had died for a second because I could not hear or feel his heart beat. After losing two babies, I was not/am not ready to lose Kalen or Brad.

I was an emotional, sobbing, wreck.

My niece called 911 and we moved Kalen into his bed.

Kalen became responsive for a minute after the 911 operator said to put a cold towel near him to wipe away foam. My niece decided to wipe his face with a real cold cloth. Kalen popped back up quick and laid back down, still unresponsive.

Kalen was eventually moved to a pallet on the floor downstairs, in the front room, with my niece, while I scrambled, with my mind gone, to pack a small bag with Kalen's shoes, pants, a shirt, my phone, charger, diapers, wipes, purse, insurance cards,  kindle, baby blanket, etc.

This child #kalen #midgetlove #midget

A video posted by Stacie D Wyatt (@sdwyatt1980) on Nov 11, 2014 at 9:03pm PST

The ambulance took us to the hospital. Kalen slept the whole time, until they had to take his blood and run an IV line.


While in the ER, I discovered two new shows on the forgotten channels. Some show with Deion Sanders and his bad kids AND some show with Shanice and Flex and mama daughter drama. Who is Heather Hannah?

Then, the destructor returned. He cried and wanted to be held at first, but then, he wanted to climb the equipment and irritate mama. He also had an MRI. His results came back normal, as usual.

Got discharged. Waited for my mother to come pick us  up. Found out another little girl, who was just discharged had a seizure too.

Hope this was Kalen's first and last seizure.

Have a blessed day

Stacie

Cant no seizure hold me down #midgetlove #midget #kalen

A video posted by Stacie D Wyatt (@sdwyatt1980) on Nov 11, 2014 at 8:53pm PST

He cleaning #midgetlove #midget #kalen

A video posted by Stacie D Wyatt (@sdwyatt1980) on Nov 11, 2014 at 9:21pm PST

Words, I wish my kids did not know (Excerpt from Never Argue 2014)

Words I wish my kids didn't know by +Stacie Wyatt 

I thought of this today, after Kalen said a cuss word: STOP because he climbed on top of my rubbermaids (2 bins high) and I removed him from his tower. Sometimes, my kids say words, which boils my insides. So, here is a collection of words, which irritate me and why.

Stacie, Kalen, and Brad

Brad: Leave me Lone (Alone):I change your diapers. Still have to bathe you because you refuse to use soap. I have to loop your belt and zip your pants. Give you your medicine and deal with your teachers.  I have to patch holes in the walls and replace plastic mattress covers every other month. Wash your sheets and regular mattress covers every other day because you found a way to pee past the covers, both plastic and regular. Therefore, I will not leave you alone, dear boy, I will not leave you alone. Until you start pooping on the potty and smelling Axe Fresh on your own, I will not leave you alone.

Brad: Don’t want that: Dearest child, I do not care if you want this or that. You will take your medications. You will shower. You will eat this dinner, I grudgingly prepared just for you, because you just ate less than an hour ago. You will get on the damn bus. Sometimes, I don’t care what you want, provided it is a necessity.

Brad: Bitch: I am your mother. I wash your smelly butt. Drag you to the doctor. Get up early to put you on the bus. Have to chase you down to put on deodorant and your body spray. I have to watch you take your meds because you will spit them out. I suffer though ARD/IEP meetings, text messages, and phone calls from Spring ISD. I am not your bitch. You will get spanked for calling me or any other woman that.

Brad: Why:  Negro, you have a limited vocabulary and I am not going to waste time, explaining in explicit detail, WHY, only for you to ask me WHY again. WHY? Because I said so. Because you can get hurt. Because you have no other options but to do what I say NOW.

Kalen: Mine: This may or may not belong to you.  This is also a fighting word between you and your cousin, Sariyah. Mine, No Mine, Mine, Mine.  Stacie is just going to take it away and put it up, until yall stop arguing.

Kalen: Ewwwww  and Boobooo: Good words, but this usually means you or your brother done pooped on the floor or smeared poop somewhere. Yay me.

Brad: Stink: Good word but this means, I have to change your filthy diapers because you refuse to poo on the pot. I also can smell what your butt is cooking lol.

Brad: Really: Word, you picked up from the yellow devil his self: Sponge Bob Stupid pants. Really means you are trying to be sarcastic and your mother is one of the reigning queens of sarcasm. Really? Sit your butt down somewhere and learn a different word.

Kalen: NO: Good word, but see STOP. He sometimes says no after he is doing something, he shouldn’t be doing and I have to stop him.

Note: I decided to add this blog post to the book, I'm working on.